Monday, February 17, 2014

NEDA Awareness Week


NEDA (National Eating Disorder Association) Awareness week begins on my birthday, February 23 and runs until March 1st.  This year, I celebrate not only turning 22 years old, but also celebrating a life free from ED. I still struggle. I still want a zipper attached to my body to crawl out of skin. I still can’t look in the mirror without grimacing. So how does one continue in recovery despite this? For me, I had a choice to make. While my ED is not a choice, I have the tools, thanks to Rosewood Eating Disorder Center in Wickenburg, AZ, to make different decisions today. Today, I choose my family. I choose my friends. I choose my boyfriend. I choose the kids at my work, my internship, my school, and someday my career. I choose my health. I CHOOSE LIFE. I choose to wake up every day and meet life head on without the use of my eating disorder to numb all joy from my soul. I choose to feel the sun and the rain. The good and the bad. The pain and the sorrow as well the laughter and hope.

I went on my first run back today after being off my foot for almost three weeks. I cried…I forget how many things I take for granted. The ability to run without pain, to have health, enough strength to move my legs across the trails…the pavement…the concrete. Pounding heart. Inhale. Exhale.

Some were not so lucky. In fact, I have lost five friends this year to their battle with an ED. It breaks my heart that their lives were cut short due to this terrible disease. So this week…I will remember their lives and the words of wisdom they spoke into my life. Their immense strength. And I will draw forth that same strength and continue to fight.

Over 24 million people in the United States suffer from an eating disorder (anad.org). Eating disorders, specifically Anorexia, are the number one… the NUMBER ONE killer of all mental disorders. NUMBER ONE!!!

The purpose of National Eating Disorder Awareness Week is to ultimately prevent eating disorders and body image issues while reducing the stigma surrounding eating disorders and improving access to treatment. Eating disorders are serious, life-threatening illnesses – not choices – and it’s important to recognize the pressures, attitudes and behaviors that shape the disorder. We have come far in the last two decades but eating disorders research continues to be under-funded, insurance coverage for treatment is inadequate, and societal pressures to be thin or look a certain way remain rampant. Some doctors fail to recognize the signs or offer the help that many people suffering from an eating disorder need. Education is vital. 


While eating disorders are often thought of as something that affect only women, the reality is anyone can fall victim to one. In fact, male eating disorders account for almost 10 percent of all cases. Perhaps even more depressing is that a 2012 study found that eating disorders in children are increasing. Little girls are beginning to diet, to restrict their food intake by age 6.


The signs of an eating disorder can vary from person to person. Common symptoms include an intense fear of being fat, weight loss, avoiding situations in which expected to eat food, using the bathroom directly after a meal, excessive exercise, having conversations that are highly centered on food or calories or weight, "having to" prepare separate meals, and fear of not knowing what ingredients are included in foods (such as at a restaurant).

However, one must remember that eating disorders are really less about food and more about the many underlying issues such as a feeling of a loss of control over life and very low self-esteem. It is hard to remember in today’s society that we all come in different shapes and sizes…and that not one is better than the other.

If you suspect a loved one may have an eating disorder, I recommend you find a neutral setting and time to meet, and then expressing your concerns gently. Think of eating disorders as you would any other serious illness. It is important to remember that they're no body's fault. People don't develop them on purpose. I know I didn’t wake up one day and think…hmm think I’m just gonna NEVER eat again…

When speaking with your friend, use non-judgmental language and 'I' statements. It is OK point out behaviors and emotions you have noticed, but avoid blaming or shaming the person. Be prepared to listen and don’t try to problem solve. Offer to help your friend find a professional to talk to. And for goodness sakes, don’t tell them to just go eat a hamburger…:/ LOVE and support are vital.

Below is a list of the affects an ED can produce:

Psychosocial:

Eating disorders profoundly impact an individuals quality of life. Self-image, relationships, physical well-being and day to day living are often adversely affected. Eating disorders are also often associated with mood disorders, anxiety disorders, and personality disorders. Bulimia nervosa may be particularly associated with substance abuse problems. Anorexia nervosa is often associated with obsessive-compulsive symptoms.  The scope of related problems associated with eating disorders highlights the need for prompt treatment and intervention.

 

Medical:

The process of starvation associated with Anorexia Nervosa can affect most organ systems. Physical signs and symptoms include but are not limited to constipation, abnormally low heart rate, abdominal distress, dryness of skin, hypotension, fine body hair, lack of menstrual periods. Anorexia Nervosa causes anemia, cardiovascular problems, changes in brain structure, osteoporosis, and kidney dysfunction.

Self-induced vomiting can lead to swelling of salivary glands, electrolyte and mineral disturbances, and enamel erosion in teeth. Laxative abuse can lead to long lasting disruptions of normal bowel functioning. Complications such as tearing the esophagus, rupturing the stomach, and developing life-threatening irregularities of the heart rhythm may also result.

 

Medical Issues: General

Physical Dangers:

Sometimes those suffering with Anorexia and Bulimia do not appear underweight - some may be of "average" weight, some may be slightly overweight, variations can be anywhere from extremely underweight to extremely overweight. The outward appearance of a person suffering with an eating disorder does not dictate the amount of physical danger they are in, nor does is determine the severity of emotional conflict they are enduring. 

Some Symptoms:

Amenorrhea - loss of menstrual cycle. 

Barrett's Esophagus - associated with Cancer of the esophagus and caused by Esophageal Reflux, this is a change in the cells within the esophagus.

Blood Sugar Level Disruptions-

Low Blood Sugar- can indicate problems with the liver or kidneys and can lead to neurological and mental deterioration.

Elevated Blood Sugar- can lead to diabetes, liver and kidney shut down, circulatory and immune system problems.

Callused fingers - caused by repeated using the fingers to induce vomiting.

Chronic Fatigue Syndrome -crippling fatigue related to a weakened immune system.

Cramps, bloating, constipation, diarrhea, incontinence - increased or decreased bowel activity.

Death- caused by any of the following or any combination of the following: heart attack or heart failure; lung collapse; internal bleeding, stroke, kidney failure, liver failure; pancreatitis, gastric rupture, perforated ulcer, depression and suicide.

Dehydration - caused by lack of intake of fluids in the body.

Dental Problems- decalcification of teeth, erosion of tooth enamel, and severe decay.

Gum Disease -caused by stomach acids and enzymes from vomiting; lack of vitamin D and calcium, and hormonal imbalance. 

Depression - mood swings and depression caused by physiological factors such as electrolyte imbalances, hormone and vitamin deficiencies, malnutrition and dehydration. Living with the Eating Disorder behaviors can cause depression. Depression can also lead the victim back into the cycle of the Eating Disorder (or may have initially been the problem before the onset of the ED). Stress within family, job and relationships can all be causes. There are also a percentage of people born with a pre-disposition to depression, based on family history.

Diabetes - high blood sugar as a result of low production of insulin. This can be caused by hormonal imbalances, hyperglycemia or chronic pancreatitis.

Digestive Difficulties - a deficiency in digestive enzymes will lead to the body's inability to properly digest food and absorb nutrients. This can lead to mal-absorption problems, malnutrition and electrolyte imbalances.

Dry Skin and Hair, Brittle Hair and Nails, Hair Loss - caused by Vitamin and Mineral deficiencies, malnutrition and dehydration

Edema - swelling of the soft tissues as a result of excess water accumulation. Most common in the legs and feet of Compulsive Overeaters and in the abdominal area of Anorexics and/or Bulimics (can be caused by Laxative and Diuretic use).

Electrolyte Imbalances - electrolytes are essential to the production of the body's "natural electricity" that ensures healthy teeth, joints and bones, nerve and muscle impulses, kidneys and heart, blood sugar levels and the delivery of oxygen to the cells. Bad Circulation, Slowed or Irregular Heartbeat, Arrhythmias, Angina, Heart Attack - There are many factors associated with having an Eating Disorder that can lead to heart problems or a heart attack. Sudden cardiac arrest can cause permanent damage to the heart, or instant death. Electrolyte imbalances (especially potassium deficiency), dehydration, malnutrition, low blood pressure, extreme orthostatic hypotension, abnormally slow heart rate, electrolyte imbalances, and hormonal imbalances call all cause serious problems with the heart.

Esophageal Reflux - Acid Reflux Disorders - partially digested items in the stomach, mixed with acid and enzymes, regurgitates back into the esophagus. This can lead to damage to the esophagus, larynx and lungs and increases the chances of developing cancer of the esophagus and voice box.

Gastric Rupture - spontaneous stomach erosion, perforation or rupture.

High Blood Pressure, Hypertension - elevated blood pressure exceeding 140 over 90. Can cause: blood vessel changes in the back of the eye creating vision impairment; abnormal thickening of the heart muscle; kidney failure; and brain damage.

Hyperactivity - manic behavior; not being able to sit still.

Impaired Neuromuscular Function - due to vitamin and mineral deficiencies and malnutrition.

Infertility - the inability to have children; caused by loss of menstrual cycle, and hormonal imbalances. Malnutrition and vitamin deficiencies can also make it impossible to succeed with a full-term pregnancy, and can increase the chances significantly of a baby born with birth defects.

Insomnia - having problems falling and/or staying asleep.

Iron Deficiency, Anemia - this makes the oxygen transporting units within the blood useless and can lead to fatigue, shortness of breath, increased infections, and heart palpitations.

Kidney Infection and Failure - kidneys cleanse the poisons from your body, regulate acid concentration and maintain water balance. Vitamin Deficiencies, dehydration, infection and low blood pressure increase the risks of and associated with kidney infection thus making permanent kidney damage and kidney failure more likely.

Lanugo - (soft downy hair on face, back and arms). This is caused due to a protective mechanism built-in to the body to help keep a person warm during periods of starvation and malnutrition, and the hormonal imbalances that result.

Liver Failure - the liver aids in removing waste from cells, and aids in digestion. Fasting and taking acetaminophen (drug found in over-the-counter painkillers) increases your risks for Liver damage and failure. Loss of menstruation and dehydration (putting women at risk for too much iron in their system), and chronic heart failure can lead to liver damage or failure.

Low Blood Pressure, Hypotension - caused by lowered body temperature, malnutrition and dehydration. Can cause heart arrhythmias, shock or myocardial infarction.

Lowered body temperature - caused by loss of healthy insulating layer of fat and lowered blood pressure.

Malnutrition - caused by undereating or overeating. Malnutrition indicates deficiency for energy, protein and micronutrients (e.g. vitamin A, iodine and iron) either singularly or in combination. It can cause severe health risks including (but not limited to) respiratory infections, kidney failure, blindness, heart attack and death.

Mallory-Weiss tear - associated with vomiting, a tear of the gastroesophageal junction.

Muscle Atrophy - wasting away of muscle and decrease in muscle mass due to the body feeding off of itself.

Orthostatic Hypotension - sudden drop in blood pressure upon sitting up or standing. Symptoms include dizziness, blurred vision, passing out, heart pounding and headaches.

Osteoporosis - thinning of the bones with reduction in bone mass due to depletion of calcium and bone protein, predisposing to fractures.

Osteopenia - below normal bone mass indicating a calcium and/or vitamin D deficiency and leading to Osteoporosis. Hormone imbalance/deficiencies associated with the loss of the menstrual cycle can also increase your risks of Osteoporosis and Osteopenia.

Pancreatitis - when the digestive enzymes attack the pancreas; caused by repeated stomach trauma, alcohol consumption or the excessive use of laxatives or diet pills.

Peptic Ulcers - caused by increased stomach acids, cigarette smoking, high consumption of caffeine or alcohol.

Pregnancy problems - including potential for high-risk pregnancies, miscarriage, still born babies and death or chronic illnesses from minor to severe, in children born (all due to malnutrition, dehydration, vitamin and hormone deficiencies).

Swelling - in face and cheeks (following self-induced vomiting)

Seizures - increased risk of seizures in Anorexic and Bulimic individuals may be caused by dehydration. It is also possible that lesions on the brain caused by long-term malnutrition and lack of oxygen-carrying cells to the brain may play a role.

Tearing of Esophagus - caused by self-induced vomiting

TMJ "Syndrome" - degenerative arthritis within the tempero-mandibular joint in the jaw (where the lower jaw hinges to the skull) creating pain in the joint area, headaches, and problems chewing and opening/closing the mouth. Vitamin deficiencies and teeth grinding (often related to stress) can both be causes.

Weakness and Fatigue - caused generalized poor eating habits, electrolyte imbalances, vitamin and mineral deficiencies, depression, malnutrition, heart problems.

Sources:

American Psychiatric Association  (1998), Eating Disorders.

Dept. of Health and Human Services (1987, 1995). Anorexia Nervosa and Bulimia.

Also adapted from EDAP, Eating Disorder Awareness and Prevention, 1998, www,edap.org

nationaleatingdisorders.org


My hope…my desire…my purpose now in life…why I believe God has lead me down this path, is to help educate people. To use my story…my struggle…to stop the suffering of others. Please. If you know someone who is struggling…or you yourself are victim of an Eating Disorder, feel free to contact me. Any day, any time. You are not alone. You are not a failure. You are loved. There is freedom and there is hope. I know this because I was RIGHT there. And now I am HERE. Use me J

Much love,

Winter Grace